LIVING WITH CANCER
-
+What Support and Resources are available?
A number of emotions can be experienced during any part of the process of diagnosis, treatment and ongoing care. Whilst living with cancer is different for each person it is important to remember that you are not the only one experiencing these feelings. The Cancer Society of New Zealand offers information and support services to people with cancer and their families around the country. The Cancer Literature on the Web has websites of women’s support groups from around the world.
-
+Family and Friends
The doctors at the Women’s Cancer Centre encourage you to bring family members or a friend with you to your appointments. They know that cancer does not affect the individual person but family members and people close to you. It is important to be open about your cancer with those close to you. This will enable them to understand your situation and be supportive. By trying to keep your illness a secret, you increase your stress level and deprive yourself of the support of your family and friends. You may alienate those close to you when they discover you have kept your diagnosis from them.
-
+Keeping Fit and Healthy
There is no particular diet or exercise routine that will stop you developing a gynaecological cancer, but a healthy diet and exercise routine can help reduce your chances. Studies have shown that there is a relationship between obesity and some gynaecological cancers such as cancers of the ovary, fallopian tubes and uterus. Studies have also shown that smoking increases your risk of developing cancer and pre-cancer of the cervix and vulva as well as recurrence of the cancer. To learn more about Keeping Fit and Healthy please see recommended cancer literature on the web: Keeping Fit and Healthy.
-
+Silver Ribbon Foundation
You may have had support from friends or family members with you from the time of your first initial consultation. Sometimes it can be helpful to be able to join a group and talk to people who have gone through similar experiences to yourself. Likewise family members and people close to you can also find it beneficial to talk to people in similar situations to themselves. Full details of this group can be accessed at the Silver Ribbon Foundation.
-
+The Cancer Society of New Zealand
The Cancer Society of New Zealand offers information and support services to people with cancer and their families around the country. This service offered by the Cancer Society is provided by liaison nurses and information oncology nurses. Additional support services provided by the Cancer Society include counseling, volunteer services and support groups. Full details of these groups and services can be accessed at the Cancer Society of NZ website.
-
+Cancer Literature on the Web (click to expand)
The Internet provides a lot of information on further reading and resources that are available from organizations and institutions around the world. This section provides a list of such sites, which are either New Zealand based or overseas. The information provided here is for extra reading and information and should not be used to make self-diagnose or used for a substitute for advice from your doctor. The benefits and risks of the treatment will depend on your personal medical condition and may vary from person to person. Always check with your doctor if you have any queries or concerns.
Disclaimer:
The Internet provides a lot of information on further reading and resources that are available from organizations and institutions around the world. This section provides a list of such sites, which are either New Zealand based or overseas. The information provided here is for extra reading and information and should not be used to make self-diagnoses or used as a substitute for advice from your doctor. The benefits and risks of treatments will depend on your personal medical condition and may vary from person to person. Always check with your doctor if you have queries or concerns. Please also be aware that the information contained in the websites listed below may not necessarily be relevant to you and your needs. Or you may read information which is contrary to what your doctor has recommended to you. If you read anything which you are not sure about or which is contrary to what is recommended, please ensure you discuss any concerns at the time of consultation with your doctor.- Societies & Organisations
- Australia & New Zealand
- Worldwide
- Women's Online Support Groups On The Net
- Nutrition & Lifestyle
- Glossaries and Terminology
- Non-English Speaking Resources on the Net
- Cancers - By Site
- HPV Vaccines to prevent cervical cancer
- Screening
- Cervical Cancer Screening
- Hereditary Cancers
- Hormone Therapy for Women with Cancer
- Radiotherapy
- Lymphoedema
- Chemotherapy
- Breast Cancer
- Online Journals & Educational Resources
Australia & New Zealand
- Royal Australian and NZ College of Obstetrics & Gynaecologists: http://www.ranzcog.edu.au/
- Cancer Society of Australia: http://www.cancer.org.au/
- Cancer Society of new Zealand: http://www.cancernz.org.nz/
- New Zealand Cancer Control Trust: www.cancercontrol.org.nz/what.php
- Ministry of Health NZ: http://www.moh.govt.nz/
- Breast Cancer NZ: http://www.breast.co.nz/
- NZ Breast Cancer Foundation : http://www.nzbcf.org.nz/
Worldwide
- Society of Gynecologic Oncologists: http://www.sgo.org/
- National Cancer Institute (US): http://www.cancer.gov/
- American Cancer Society: http://www.cancer.org/
- Silver Ribbon Foundation - New Zealand: http://www.silverribbon.co.nz/
For gynaecological cancers - Go Fund Foundation - Australia: http://gofund.org.au/html/gynaecological_cancers.htm
- Gillette Cancer Connect: http://www.gillettecancerconnect.org/
- Healthywomen: www.healthywomen.org.nz/
- ACOR: http://listserv.acor.org/archives/gyn-onc.html
- Women's Cancer Network: http://www.wcn.org/
- NZ Dietetic Association: http://www.dietitians.org.nz/
- CancerHelp (UK): www.cancerhelp.org.uk/help/default.asp?page=10417
Diet problems with cancer. - National Cancer Institute: www.cancer.gov/cancertopics/chemotherapy-and-you/page5
Information about eating well during chemotherapy. - National Cancer Institute: www.cancer.gov/cancerinfo/eatinghints
Information about eating before, during and after treatment. - American Institute for Cancer Research: www.aicr.org/site/PageServer?pagename=dc_home
- CancerBACKUP, UK: www.cancerbackup.org.uk/Resourcessupport/Eatingwell/Furtherresources
Eating well. - CancerBACKUP, UK: www.cancerbackup.org.uk/Resourcessupport/Eatingwell/Eatingproblems
Eating problems. - National Cancer Institute: www.cancer.gov/cancertopics/eatinghints
Eating hints for cancer patients: before, during & after treatment.
- Cancer Glossary: www.cancerindex.org/glossary.htm
This hypertext glossary is integrated with this Guide to InterNet Resources for Cancer. - Cancer Definitions (National Cancer Institute): http://www.cancer.gov/dictionary/
A comprehensive glossary of cancer-related terms. - Cancer Glossary (American Cancer Society): www.cancer.org/docroot/SI/si_1.asp
- NSW Health: Multicultural Health Communication (Australia):
www.mhcs.health.nsw.gov.au/mhcs/languages.html
Languages with cancer information: Arabic, Chinese, Croatian, English, Greek, Italian, Korean, Macedonian, Portuguese, Russian, Serbian, Spanish, Thai, Turkish, Vietnamese. - Multilingual Glossary of technical and popular medical terms (Heymans Institute of Pharmacology, Belgium):
http://allserv.rug.ac.be/~rvdstich/eugloss/welcome.html
Nine European languages: Danish, Dutch, English, French, German, Italian, Portuguese, Spanish. - Geneva Foundation for Medical Education and Research:
www.gfmer.ch/Guidelines/Female_genital_neoplasms/Endometrial_cancer.htm
French, Spanish, Italian, Dutch. - GINE Web The Spanish online resource for women's health and well-being:
www.unizar.es/gine/home.htm
Includes some cancer info. Spanish and English language. - Cancer Communication - Women's Cancer Information Project:
http://www.eurohealth.ie/cancom/
European Institute of Women's Health - English, French, Italian. - National Cancer Institute: wwwinfo.ncc.go.jp/0sj/indexj.html
Japanese. - Cancer Society of Brazil: http://www.sbcancer.org.br/
Brazil Portuguese. - American Cancer Society: http://www.acscsn.org/chinese/
Chinese language information.
Cervical Cancer
- The Geneva Foundation for Medical Education and Research:
www.gfmer.ch/Guidelines/Female_genital_neoplasms/Cervical_cancer.htm - CancerBACKUP, UK: www.cancerbackup.org.uk/Cancertype/Cervix
- National Cancer Institute, USA: www.cancer.gov/cancertopics/types/cervical
- CancerHelp, UK: www.cancerhelp.org.uk/help/default.asp?page=2739
- MedicineNet: www.medicinenet.com/Cervical_Cancer/index.htm
- CanCom - European Institute of Women's Health, Ireland: www.eurohealth.ie/cancom/cercan1.htm
- National Cancer Institute: www.cancer.gov/cancertopics/wyntk/cervix
Endometrial Cancer
- CancerBACKUP, UK: www.cancerbackup.org.uk/Cancertype/Wombuterus
- Womens cancer center: www.womenscancercenter.com/info/types/uterus.html
- OncoLink: www.oncolink.upenn.edu/types/article.cfm?c=6&s=18&ss=137&id=8227
- Geneva Foundation for Medical Education and Research:
www.gfmer.ch/Guidelines/Female_genital_neoplasms/Endometrial_cancer.htm - CanCom - European Institute of Women's Health: www.eurohealth.ie/CanCom/endocan.htm
- National Cancer Institute: http://imsdd.meb.uni-bonn.de/cancer.gov/CDR0000062964.html
Cancer of the Fallopian Tube
- The Geneva Foundation for Medical Education and Research:
www.gfmer.ch/Guidelines/Female_genital_neoplasms/Tubal_cancer.htm - OncoLink: www.oncolink.upenn.edu/types/section.cfm?c=6&s=49
- CanCom - European Institute of Women's Health: www.eurohealth.ie/cancom/fallopin.htm
Gestational Trophoblastic Cancers
- National Cancer Institute: www.meb.uni-bonn.de/cancer.gov/CDR0000062699.html
Ovarian Cancer
- The Geneva Foundation for Medical Education and Research:
www.gfmer.ch/Guidelines/Female_genital_neoplasms/Ovarian_cancer.htm - CancerBACKUP, UK: www.cancerbackup.org.uk/Cancertype/Ovary
- Womens Cancer Centre, USA: www.womenscancercenter.com/info/types/ovary.html
- OncoLink: www.oncolink.upenn.edu/types/article.cfm?c=6&s=19&ss=766&id=8589
- National Cancer Institute, USA: http://cancer.gov/cancerinfo/types/ovarian/
- CancerHelp, UK: www.cancerhelp.org.uk/help/default.asp?page=2792
- CanCom - European Institute of Women's Health: www.eurohealth.ie/cancom/ovaries.htm
Ovarian: Epithelial Cancer
- The National Cancer Institute: www.cancer.gov/cancerinfo/pdq/treatment/ovarianepithelial
Ovarian: Germ Cell
- The National Cancer Institute: www.cancer.gov/cancerinfo/pdq/treatment/ovarian-germ-cell
- CancerBACKUP, UK: www.cancerbackup.org.uk/Cancertype/Ovary/Relatedcancers/Germcelltumoursoftheovary
Unknown Primary Type
- National Cancer Institute: www.meb.uni-bonn.de/cancer.gov/CDR0000062729.html
- ACOR information: http://listserv.acor.org/archives/acup.html
(you will need to subscribe for access to this site) - Cancer Help, UK: www.cancerhelp.org.uk/help/default.asp?page=4726
Uterine Cancer
- The Geneva Foundation for Medical Education and Research:
www.gfmer.ch/Guidelines/Female_genital_neoplasms/Uterine_sarcoma.htm - The National Cancer Institute: www.cancer.gov/cancerinfo/pdq/treatment/uterinesarcoma
- OncoLink: www.oncolink.upenn.edu/types/article.cfm?c=6&s=18&ss=137&id=8227
- CancerHelp, UK: www.cancerhelp.org.uk/help/default.asp?page=4655
- MedicineNet: www.medicinenet.com/Uterine_Cancer/index.htm
- National Cancer Institute: www.meb.uni-bonn.de/cancer.gov/CDR0000062731.html
- CancerBACKUP, UK: www.cancerbackup.org.uk/Cancertype/Wombuterus
Vaginal Cancer
- The Geneva Foundation for Medical Education and Research:
www.gfmer.ch/Guidelines/Female_genital_neoplasms/Vaginal_cancer.htm - The National Cancer Institute: www.cancer.gov/cancerinfo/pdq/treatment/vaginal
- CancerBACKUP, UK: www.cancerbackup.org.uk/Cancertype/Vagina/Vaginalcancer
- Womens Cancer Center: www.womenscancercenter.com/info/types/vagina.html
- OncoLink: www.oncolink.upenn.edu/types/subsection.cfm?c=6&s=20&ss=160
- CanCom - European Institute of Women's Health:
www.eurohealth.ie/cancom/vaginal.htm - National Cancer Institute: http://imsdd.meb.uni-bonn.de/cancer.gov/CDR0000258349.html
Vulva Cancer
- The Geneva Foundation for Medical Education and Research:
www.gfmer.ch/Guidelines/Female_genital_neoplasms/Vulvar_cancer.htm - The National Cancer Institute: www.cancer.gov/cancerinfo/pdq/treatment/vulvar
- CancerBACKUP, UK: www.cancerbackup.org.uk/Cancertype/Vulva
- OncoLink: www.oncolink.upenn.edu/types/subsection.cfm?c=6&s=21&ss=168
- CanCom - European Institute of Women's Health: www.eurohealth.ie/cancom/vulva.htm
- HPV Immunisation Programme in NZ information:
http://www.moh.govt.nz/immunisation - HPV Vaccine or general immunization queries in NZ:
http://www.immune.org.nz/ - The New Zealand HPV Project:
http://www.hpv.org.nz/patient/hpv_vaccine.htm - NZ Ministry of Health:
http://www.moh.govt.nz/moh.nsf/UnidPrint/MH8221?OpenDocument - Cancerbackup:
http://www.cancerbackup.org.uk/?Cancertype/Cervix?General/HPVvaccines
Cervical Cancer Screening
- National Cancer Institute: http://imsdd.meb.uni-bonn.de/cancernet/504728.html
- National Cervical Screening Programme, New Zealand: www.healthywomen.org.nz/NCSP/newbrochure.aspx
- CancerBACKUP, UK: www.cancerbackup.org.uk/Aboutcancer/Screening/Cervicalscreening
Hereditary Cancer Screening
- National Breast Cancer Centre: www.nbcc.org.au/bestpractice/riskfactors/genetics.html
- Women's Cancer Information Project: www.eurohealth.ie/cancom/genetic.htm
- CancerHelp, UK: www.cancerhelp.org.uk/help/default.asp?page=128
- National Cancer Institute, USA: www.cancer.gov/cancertopics/treatment/types-of-treatment
- Oncolink: www.oncolink.upenn.edu/treatment/section.cfm?c=5&s=27
- ACOR (Association of Cancer Online Resources): www.acor.org/treatment.html
- National Cancer Institute: Radiation Therapy and You: www.cancer.gov/cancertopics/radiation-therapy-and-you
- The Lymphoedema Association of Australia: www.lymphoedema.org.au/index.htm
- British Lymphology Society: http://www.lymphoedema.org/
- CancerBACKUP: www.cancerbackup.org.uk/Resourcessupport/Symptomssideeffects/Lymphoedema
- Cancer BACKUP, UK: www.cancerbackup.org.uk/Treatments/Chemotherapy/Generalinformation/Overview
- Cancer Council of Victoria, Australia:
www.cancervic.org.au/about-cancer/types-treatments-trials/cancer_treatment_and_side_effects/chemotherapy - National Cancer Institute, USA: www.cancer.gov/cancertopics/treatment/types-of-treatment
- CancerHelp, UK: www.cancerhelp.org.uk/help/default.asp?page=127
- ACOR - (Association of Cancer Online Resources): www.acor.org/treatment.html
- National Cancer Institute: Help Yourself during chemotherapy:
www.cancer.gov/cancertopics/helping-yourself-during-chemotherapy
- The Geneva Foundation for Medical Education and Research:
www.gfmer.ch/Guidelines/Female_genital_neoplasms/Gynecologic_oncology.htm - CANCER: www3.interscience.wiley.com/cgi-bin/browsebysubject?code=MEDI
The interdisciplinary international journal of the American Cancer Society. The print and online versions of the journal are published by John Wiley & Sons, Inc. - Journal of the National Cancer Institute: http://jncicancerspectrum.oupjournals.org/
Publishes original research papers in oncology from around the world. Each issue contains extensive news about important cancer-related science, policy, politics, and people as well as editorials and reviews by oncology experts, book reviews, and commentaries on timely topics. - Elsevier Science: http://www.elsevier.com/
Publishes a wide range of literature covering the broad spectrum of scientific endeavors. A directory of the medical journals they publish is available at www.elsevier.com/wps/find/homepage.cws_home. - FreeMedicalJournals.com: http://www.freemedicaljournals.com/
The Free Medical Journals site is dedicated to the promotion of free access to medical journals over the Internet. - MEDLINE: www.ncbi.nlm.nih.gov/PubMed
The online version of MEDLARS (MEDical Literature Analysis and Retrieval System), the National Library of Medicine's premier bibliographic database covering the fields of medicine, nursing, dentistry, veterinary medicine, the health care system, and pre-clinical sciences. Free online access to MEDLINE is available through PubMed which provides access in one location to over nine million medical journal reports dating back to 1966. Citations are created by the National Library of Medicine, International MEDLARS partners, and cooperating professional organizations. - Journal of Clinical Oncology: www.jco.org/
- Medscape Oncology: www.medscape.com/
Features medical journal articles, images, case reports, medical news, free MEDLINE, CME, and drug searching on diagnosis, treatment, and prevention. - H. Lee Moffitt Cancer Center & Research Institute Cancer Control: Journal of the Moffitt Cancer Center:
www.moffitt.usf.edu/ccjournal/index.html
This peer-reviewed Journal contains articles on the spectrum of actions and approaches needed to reduce the impact of human malignancy. - RobertsReview of Cancer Research Breakthroughs: www.robertsreview.com/
RobertsReview.com specializes in reporting daily "breaking" cancer treatment and research news (by specific cancer type). - Wiley InterScience - Wiley Journals on Line: www3.interscience.wiley.com/cgi-bin/browsebysubject?code=MEDI
Online editions of the majority of Wiley's 400+ scientific, technical, medical and professional journals, with tables of contents, article abstracts, links to online resources, full-text articles, and supplementary material.
- University of Birmingham in collaboration with Cancer BACUP: www.cancerhelp.org.uk/help/default.asp?page=3266
- The National Cancer Institute: www.cancer.gov/cancerinfo/pdq/treatment/breast
- New South Wales, Australia Breast Cancer Institute: www.bci.org.au/
- Early Breast Cancer, Australia: http://www.nbcc.org.au/
- Women's Cancer Center: www.womenscancercenter.com/info/types/breast.html
- OncoLink: www.oncolink.upenn.edu/types/article.cfm?c=3&s=5&ss=33&id=8320
- Breast Cancer On-Line: http://www.bco.org/
Supported by an educational grant from Astra-Zeneca and is published and maintained by Greenwich Medical Media. - BreastCancer.Net: http://www.breastcancer.net/
Features the latest news stories and medical journal articles on breast cancer research from a variety of online resources. - MAMM.com - Women Cancer and Community: http://www.mamm.com/
A magazine devoted to meeting the needs of women diagnosed with breast and reproductive cancer.
Last Updated: November 09
- Societies & Organisations